article Open AccessTop 1% cited
Sharing Health Data for Better Outcomes on PatientsLikeMe
Journal of Medical Internet Research · 2010 · Vol. 12(2) · pp. e19–e19
Paul Wicks✉(PatientsLikeMe (United States))Michael P. Massagli(PatientsLikeMe (United States))Jeana Frost(PatientsLikeMe (United States))Catherine A. Brownstein(PatientsLikeMe (United States))Sally Okun(PatientsLikeMe (United States))Timothy E. Vaughan(PatientsLikeMe (United States))Richard N Bradley(PatientsLikeMe (United States))James Heywood(PatientsLikeMe (United States))
Abstract
We have established that members of the community reported a range of benefits, and that these may be related to the extent of site use. Third party validation and longitudinal evaluation is an important next step in continuing to evaluate the potential of online data-sharing platforms.
Health Literacy and Information AccessibilityPatient-Provider Communication in HealthcareChronic Disease Management StrategiesHealth dataComputer scienceHealth carePsychologyData sciencePolitical science
MeSH terms
AdultCommunity ParticipationCross-Sectional StudiesData DisplayDecision Support TechniquesFemaleHumansMaleMiddle AgedOnline SystemsPhysician-Patient RelationsPopulation SurveillanceSelf CareSelf-Help GroupsSocial Support
Citations
633
FWCI
79.26
field-weighted impact
References
37
Percentile
100%
vs. same field & year
Citations per year
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References
Social Uses of Personal Health Information Within PatientsLikeMe, an Online Patient Community: What Can Happen When Patients Have Access to One Another’s Data
Journal of Medical Internet Research · 2008 · 549 citations
Improving the Quality of Web Surveys: The Checklist for Reporting Results of Internet E-Surveys (CHERRIES)
Journal of Medical Internet Research · 2004 · 6,119 citations
Emerging Patient-Driven Health Care Models: An Examination of Health Social Networks, Consumer Personalized Medicine and Quantified Self-Tracking
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