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A National Profile of Caregiver Challenges Among More Medically Complex Children With Special Health Care Needs
Archives of Pediatrics and Adolescent Medicine · 2011 · Vol. 165(11) · pp. 1020–1020
Dennis Z. Kuo✉(University of Arkansas for Medical Sciences)
Abstract
Extraordinary and diverse needs are common among family caregivers of more complex CSHCN. Enhanced care coordination support, respite care, and direct home care may begin to address the substantial economic burden and the multiple unmet needs that many of these families face.
Adolescent and Pediatric HealthcareChild and Adolescent HealthHealthcare Policy and ManagementRespite careInterquartile rangeMedicineHealth careFamily medicineMedical homePopulationFamily centered careNursingPrimary care
MeSH terms
AdolescentChildChild, PreschoolChronic DiseaseCommunity Health ServicesFemaleHumansInfantInfant, NewbornMaleSocial SupportUnited StatesCaregiversCost of IllnessHealth Care Surveys
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References
Prevalence and severity of feeding and nutritional problems in children with neurological impairment: Oxford Feeding Study
Developmental Medicine & Child Neurology · 2000 · 419 citations
Children With Medical Complexity: An Emerging Population for Clinical and Research Initiatives
PEDIATRICS · 2011 · 1,281 citations
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